Amy received a letter from “Janet H.” who works at UMR, our health insurance company. UMR denied Amy’s request for an Intermittent Pneumatic Compression boot even though it is an effective treatment for lipodema.
We also learned that UMR denied our request to help with the cost of the infrared sauna used to treat Amy’s disease.
When UMR concludes there is no medical necessity for a sauna (and other treatments) based on clinical data available, we are not in the least bit surprised. The medical community knows very little about Lipedema because it has not been well-researched. More clinical data is needed.
That is the biggest challenge of this disease. It’s unlike cancer, crohn’s disease or celiac’s (for example) which are diagnosed and a well-researched, so a well-documented treatment plan is prescribed and therefore covered by insurance.
October is Breast Cancer Awareness Month but there is no month dedicated to Lipedema. So Amy, unfortunately, is a bit of a pioneer. The medical community has not yet come up with a treatment plan so the insurance companies don’t know what valid treatments they should cover and as a result, everything is denied.
But we don’t have the luxury of waiting twenty years for the clinical data to be compiled and disseminated throughout the medical community. Amy is sick today (literally, today, is in a LOT of pain).
We deeply appreciate your continued prayer support for Amy. If our pisteuo was in UMR, we would be crushed. But the Lord is a “refuge for the oppressed, a stronghold in times of trouble. Those who know Your name trust in You, for You, Lord, have never forsaken those who seek You.” - Psalm 9:9-10